This bill would require the department of health to provide information about the testing program, and to obtain written consent from the parent or guardian acknowledging receiving information regarding the storage, retention, and use of the newborn child’s blood sample for medical research. The bill would prohibit any residual newborn screening specimen from being released to any person or entity for law enforcement purposes. The bill would authorize a parent or guardian of a minor child to consent to the storage of the residual blood sample and the use of the sample for research purposes prior to or at the time the sample is taken.
Each year in California, newborns are screened for genetic conditions. Most parents do not understand that the information obtained during the testing process becomes the property of the state. The state makes these residual blood samples available to third party researchers without the consent of parents.
Current Status: Passed the Senate Health Committee but for strategic reasons will be a two year bill.
Call to Action: Reach out to your state Senator and Assemblymember and voice your position on this bill.
Find your legislator here: https://findyourrep.legislature.ca.gov
Aria Morgan is the Managing Editor of Free Now Foundation. Aria is a passionate and accomplished editor with a diverse background in writing for various industries, including music, film, health and yoga, and with published covers and feature credits in national magazines. Aria is dedicated to protecting civil rights and promoting health and medical freedom, and is thrilled to be a part of the Free Now Foundation team.